Saturday, August 5, 2023

Neuro appointment

 I cannot get in to see a Neurologist until Oct 17!  I have to wait almost 2 full months just to get a doctor to explain my MRI results to me...

What and where are the osteomas?  Are they causing the new pain?

What is a sclerotic lesion T2?  What causes that?  What is the repercussions and what do I expect for the future of my brain with this lesion.

Why is a tumor growing on my bone???  It is not a meningioma (I still have all of those) Osteomas are bone tumors that grow on bones...what the fuck does that mean for the inside of my head?

My PA doc, referred to the osteomas as bone spurs...I googled bone spurs, and a bone spur is caused by repeated movement in a joint, usually spine, arms, legs...like that...nothing in my head has joints except for my jaw...so he is so wrong by saying that....

this is why I need a Neurologist to explain the facts, and future of my brain to me.....

So now I have to wait and let my imagination run wild with all the questions, symptoms and what the internet/google says about each of those aforementioned issues...

FUCK

S

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she will not be okay...I have been dealing with her health issues for years,  I know her body better than she does....her pain is real,  and it is organic in nature.  I get aggravated when she is written off by her doctors...I am not happy with her doctor, here in Virginia, being so flippant with her about the results.  She constantly worries about her health, I do not understand why she keeps losing weight, that is not natural for her.  But not one doctor is addressing her weight loss issue...why not?

In Oklahoma, she had better doctors and better quicker access to specialist and testing.  Here in Virginia, she is lost and cannot get the help and medical attention she needs.  I feel she needs to go back to Oklahoma because of her medical issues...Virginia doctors are not helping her at all....

Tessa

 

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