It is the fuck worse disease in the world for a child...it slowly decapitates the person, literally growing until the person is completely beheaded....spinal cord severed at brain stem.....
The first sign, pain in the neck, and flu like symptoms
then difficulty swallowing, talking, actute headaches and pain
then not being able to swallow at all
loss of motor function of limbs
and eventually the brain is starved of oxygen and you die....
This happened to my grandson in the course of 2 mos, from diagnosis to death.....
Try watching a vibrant healthy little boy go from normal, to decapitated in 2 mos...it is sickening...
Gage's last day alive
His organs will be donated so maybe some other kids can live through whatever horror awaits them....
His brain and chordoma tumor, will be donated to the Chordoma Organization for study....
He will be thrown in a casket and dropped in the ground and life goes on....without Gage.....
We get to have a life, but Gage was robbed of his....
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